Help For Long Term Care?

Saving for care in our old age usually falls by the wayside in favor of the things we want to pay for now. A relatively little known provision in some health care bills allows people to voluntary contribute to a national fund that would pay at least $50 a day for at home nursing care for people who are disabled.


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Having the Final Say

LegalZoomDo you remember Terri Schiavo, who at age 27, suffered a cardiac arrest, that lead to brain damage due to lack of oxygen? Her case went to the Supreme Court because she lacked legal documents that made her wishes clear. No one wants to believe anything bad could happen to them, but it can and often does. You can avoid some of the pain of of this type of situation by executing the proper legal documents.

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Living (And Thriving) With A Physical Disability

01[1]I am a lot of things to many people. Daughter. Sister. Best friend. Writer. Columnist. Blogger.

Oh, yeah, and I have a physical disability, too.

Yes, I know that might sound a bit strange. To list one’s disability as a footnote of sorts, but that’s how I’ve come to view my disability. I was born with Freeman-Sheldon Syndrome, a rare genetic bone and muscular disorder. I’ve lived with its ups and downs all my life. It’s become a part of me.

But, it’s not all of me. I’m not a person with a disability. I’m a person living with a disability (through my writing, through seeking out more independence for myself, just to name a new). And there’s a world of difference between the two.

We all have goals, dreams, hopes and aspirations in life. Some big. Some not-so-big. Some that involve changing your life. Some that involve making a difference in someone else’s life. There’s no reason that you can’t overcome those bumpy obstacles along your path and come out smiling on the other side. I did.

I watched a recent episode of the FOX hit House, in which Dr. Eric Foreman, the tough-talking neurologist, remarked on the status of a patient they were treating, “Being deaf isn’t an identity. It’s a disability.”

I’m not so sure I believe that. It seems too black-and-white for me. Because when it comes down to it, and whether everyone would agree or not, being disabled (and especially in my case, being disabled since birth) has indeed helped shape a significant portion of my identity. It’s not all I am, of course, but it’s a nice slice of the pie. But, as you’ll see in the coming months through this blog, I haven’t let it stop me from living my life the way I want. Sometimes I feel like I’ve done a lifetime of living in my 28 years, but now, with the majority of my medical endeavors behind me, I’m at a point where I feel like I can finally get to the good stuff: actual living. So, in a way, maybe I’m just beginning my journey. I hope you’ll come along for the ride.

But back to Foreman’s one-way-or-the-other statement: Why does it have to be one or the other – either a disability or an identity? Can’t it be both, whether you’re deaf or have blue eyes or are half Swedish? Did I mention I’m half Swedish too? See, there’s another piece of my ever-expanding pie.

What individual slices make up your own pie? I’d love to hear all about you, and I look forward to sharing the pieces of my pie with you. And of course, they’ll be seconds.


Ouch Podcast #41

This month it’s all about summer fun. Listen to our Clothes Clinic phone-in; your questions answered by blind fashion columnist Claire Jennings and WheelieChix-Chic fashion house founder Louisa Summerfield. Rob Crossan attempts to thrash our presenters at a disability quiz, our Vegetable Vegetable or Vegetable game returns plus music from unsigned band Bete Noire and oodles of chat. With Mat Fraser and Liz Carr.

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