Living (And Thriving) With A Physical Disability
I am a lot of things to many people. Daughter. Sister. Best friend. Writer. Columnist. Blogger.
Oh, yeah, and I have a physical disability, too.
Yes, I know that might sound a bit strange. To list one’s disability as a footnote of sorts, but that’s how I’ve come to view my disability. I was born with Freeman-Sheldon Syndrome, a rare genetic bone and muscular disorder. I’ve lived with its ups and downs all my life. It’s become a part of me.
But, it’s not all of me. I’m not a person with a disability. I’m a person living with a disability (through my writing, through seeking out more independence for myself, just to name a new). And there’s a world of difference between the two.
We all have goals, dreams, hopes and aspirations in life. Some big. Some not-so-big. Some that involve changing your life. Some that involve making a difference in someone else’s life. There’s no reason that you can’t overcome those bumpy obstacles along your path and come out smiling on the other side. I did.
I watched a recent episode of the FOX hit House, in which Dr. Eric Foreman, the tough-talking neurologist, remarked on the status of a patient they were treating, “Being deaf isn’t an identity. It’s a disability.”
I’m not so sure I believe that. It seems too black-and-white for me. Because when it comes down to it, and whether everyone would agree or not, being disabled (and especially in my case, being disabled since birth) has indeed helped shape a significant portion of my identity. It’s not all I am, of course, but it’s a nice slice of the pie. But, as you’ll see in the coming months through this blog, I haven’t let it stop me from living my life the way I want. Sometimes I feel like I’ve done a lifetime of living in my 28 years, but now, with the majority of my medical endeavors behind me, I’m at a point where I feel like I can finally get to the good stuff: actual living. So, in a way, maybe I’m just beginning my journey. I hope you’ll come along for the ride.
But back to Foreman’s one-way-or-the-other statement: Why does it have to be one or the other – either a disability or an identity? Can’t it be both, whether you’re deaf or have blue eyes or are half Swedish? Did I mention I’m half Swedish too? See, there’s another piece of my ever-expanding pie.
What individual slices make up your own pie? I’d love to hear all about you, and I look forward to sharing the pieces of my pie with you. And of course, they’ll be seconds.
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I think that what Dr. Eric Foreman was trying to say is that the disability is not what defines someone, its their character.
I think that no matter what difficulties we face, our character shapes our attitude, and our attitude determines our happiness and feeling of fulfillment in our lives.
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I do not think it’s strange to list a disability as a footnote at all. That’s what it is in many ways, because it doesn’t define you. More power to you on your positive outlook. But yes, I do think it can be both part of your identity and also something that is just a small part of it overall.
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I really enjoyed the articles you have.Really lots of idea and it helps me too.I must say that if the mind is still able it can transcend beyond its present situation despite of his disability. Mind has still the capacity to do great things even if the body is incapacitated.
[...] Living (And Thriving) With A Physical Disability [...]
[...] Living (And Thriving) With A Physical Disability [...]
See, even if you’re disabled with some disorder, I don’t see you disabled. We all have physical disabilities, either in looks or with the functioning of any part. What you have is enthusiasm, will power, courage to face life and desire to live life fully!
Never lose it my friend
This is something which many of the so-called people with no disabilities doesn’t have
.
And I enjoy your blog.